Living Hope

OC Affiliate Chair, JB Jaso shares PanCAN‘s successes and his goals for the Affiliate.

JB's childhood friend, Tyler Neosen was diagnosed with pancreatic cancer when he was only 25 years old.  Tyler invited JB to attend his first PanCAN Advocacy Day in 2010, leading JB to continue to fight in Tyler's memory and becoming a volunteer with the Orange County Affiliate.  JB has only been Affiliate Chair for 3 months and with the core leadership group has devoted many hours planning the goals for FY 2022.   Besides supporting PanCAN's goals the OC Affiliate will hold monthly meetings giving updates about PanCAN, Affiliate updates, guest speakers and planning and supporting upcoming events.  A main goal will be supporting our Survivors and Caregivers, maintain federal advocacy efforts, increase our social media presence and turn Orange County Purple!   This episode of Living Hope is dedicated to Tyler Noesen. 

Living Hope-P.S. We‘re Back! PurpleStride Chair shares what PurpleStride is and how to get involved.

Vic Luna, OC PanCAN PurpleStride Chair shares why he became  involved and why you should join us for PanCAN PurpleStride Orange County 2022!  Do you know how the funds raised by PanCAN PurpleStride fight the worlds toughest cancer? Are you interested in volunteering or becoming a sponsor? 

Find these answers and more here on Living Hope; Your Journey with Pancreatic Cancer livestreaming on www.octalkradio.biz Orange County’s only community radio station. 

UCI Beall Applied Innovation at the Cove pancan.org 

Living Hope-A unique approach to chemotherapy helped not only this Survivor but her family and friends as well.

Chemotherapy is a difficult treatment to go through.  As difficult as it was Dawnie found a way to not only help her get through it, but it helped her support group as well.  Dawnie is also very open about her experience with chemo side effects, neuropathy and having to learn her body again and neuropathy.  Only on www.octalkradio.net Orange County's only Community Radio Station, livestreams from UCI Beall Applied Innovation Center @TheCove www.facebook.com/LivingHope2055

www.livinghopepc.com 

 

Living Hope-JB Jaso shares his journey with pancreatic cancer and how he continues the fight in honor of his childhood friend.

 JB Jaso and Tyler Noesen were childhood friends.  Life has a way of moving on, Tyler, married the love of his life and JB went on to join the US Army and serve our country.  Even though they had not seen each other for a while, when Tyler was diagnosed with stage IV pancreatic cancer he asked JB to join him in Washington, DC and participate in PanCAN's National Advocacy Day.  JB didn't know what to expect that day, but from that day on he continued the fight with Tyler and still continues today even after Tyler's death in 2012. Whether you watch or listen as JB shares his journey you will be moved.  Taken from Tyler's Blog of Live "Dream as if you'll live forever, Live as if you'll die today."

Living Hope-Man she never met inspires her to get involved with the Hirshberg Foundation.

Elissa Oblath joined the Hirshberg Foundation for Pancreatic Cancer Research after hearing stories about her sister-in-laws father who had died from pancreatic cancer.  Though he died before they met, hearing her sister-in-law share stories about her father, inspired Elissa to get involved.  This connection drew Elissa to Hirshberg and she now serves as their Communication Director.  She shared her connection to pancreatic cancer, what a Communications Director does and upcoming event "Tour de Pier," on octalkradio.net Orange County's only community radio station. Livestreamed from UCI Beall Applied Innovation at the Cove 

If you or anyone you know need help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at www.pancan.org or call 877-2-PANCAN.  If you’d like to share your story or have story ideas, please contact Roberta Luna at LivingHope2055@outlook.com

More Journeys can also be found on facebook.com/LivingHope2055  and our website www.livinghopepc.com

 

Living Hope-Sister does the unimaginable to support her sister.

Kelly Barber and her sister Wendi Cihacek share their journey with pancreatic cancer. Kelly talks honestly and emotionally about losing her husband, George, in 2006 to Pancreatic Cancer. Wendi did the unimaginable and moved across the state to support her sister and help with her niece, Megan, who was 2 at the time. Kelly took her pain and grief and turned it into something positive. She became involved with her local PanCAN affiliate, attending meetings, raising awareness and funds and sharing her journey with Members of Congress. Not surprisingly Wendi stepped in and supported her at every turn. Kelly shares, “When we first got started, it was just for George. Today, it’s still for George, but it’s also for all the people we’ve met who are alive and fighting.”  Only on www.octalkradio.net Orange County's only Community Radio Station, livestreams from UCI Beall Applied Innovation Center @TheCove www.facebook.com/LivingHope2055

www.livinghopepc.com 

www.pancan.org #PancreaticCancer #DemandBetter 

Living Hope-What only PanCAN is doing

Founder, Pamela Acosta Marquardt shares "What Only PanCAN is Doing."  Pam talks about how Patients/Survivors and their families can call "Patient Services," they will be assigned their own personal Case Manager and provided with the most updated resources and information at no cost. Information like "Know Your Tumor," "Clinical Trial Data Base," and the "Patient Registry," along with other helpful information. Updates on PanCAN's Advocacy, Research and so much more is explored here on www.octalkradio.biz Orange County's only Community Radio Station livestreamed from UCI Beall Applied Innovation at the Cove 

If you or anyone you know need help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at www.pancan.org or call 877-2-PANCAN.  If you’d like to share your story or have story ideas, please contact Roberta Luna at LivingHope2055@outlook.com

More Journeys can also be found on facebook.com/LivingHope2055  and our website www.livinghopepc.com

Pancreatic Cancer Action Network 

Living Hope-A sister deals with the diagnosis and death of her brother by giving back.

Julia Tominaga shares her journey with her brother Curtis, “the kind of brother that always looked out for his sisters...almost like having a third parent.” Curtis was diagnoses with stage IV pancreatic cancer after being taken to the ER.  There were few treatment options.  Curtis lived only two and half weeks after being diagnosed. After losing her brother, Julia wanted to do something to help others who were affected, she wanted them to know they weren't alone.  Hear why over 10 years later, Julia is still involved in helping others devastated by a pancreatic cancer diagnosis. Only on www.octalkradio.biz Orange County's only Community Radio Station livestreaming from UCI Beall Applied Innovation at the Cove Thursdays at 11:00am PDT

If you or anyone you know need help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at www.pancan.org or call 877-2-PANCAN.  If you’d like to share your story or have story ideas, please contact Roberta Luna at LivingHope2055@outlook.com

More Journeys can also be found on facebook.com/LivingHope2055  and our website www.livinghopepc.com

Pancreatic Cancer Action Network 

#PaulRoberts #PancreaticCancer #DemandBetter

 

Conversation during first date leads to a surprising connection to pancreatic cancer

Dr. Lee Reitler and Dwaine Mattei-Reitler share their unique journey with pancreatic cancer.  You'll hear how they meet, how a conversation during their first date lead them to a  surprising connection and why they are passionate about helping others battling the world's toughest cancer. 

Living Hope-Wife refuses to give up the fight and starts a Foundation in memory of her husband.

Agi and Ron met by chance when Agi’s father coached Ron’s son’s soccer team.  Little did they know that on that day they would meet, fall in love and marry 3 months later.   Ron was a real dynamite of a man, they balanced each other immediately.  Ron was a thinker and Agi was a doer. Partners in life, partners in business and partners in fighting pancreatic cancer.  Losing Ron was devastating but, Agi refused to give up on what they had been fighting for.  They were fighting for a cure, they were fighting to live.  After Ron’s death, Agi immediately took her pain and grief and turned it into something positive, the start of a foundation in memory of the man she loved.  Agi's daughter, Lisa had a promising career of her own.  Wanting to support her mother she agreed to help with the foundation while she was on maternity leave.  Though she fully intended to go back and pursue her career, 20+ years later Lisa is now the Executive Director for the Foundation for Pancreatic Cancer Research and Co-Founder of the annual event Tour de Pier. 

Agi, not one to let any grass grow under her feet started working on the foundation immediately after Ron’s death in May 1997.  In July,  that same year, the Hirshberg Foundation for Pancreatic Cancer Research was born.  

When asked what pearls of wisdom Agi could share with other Caregivers – "Have your moments, not just the disease.  Your life is not about the disease, it’s about your relationship and about how you love each other."

For more information on the Hirshberg Foundation and the Tour de Pier please visit www. https://pancreatic.org/

On OC Talk Radio, Orange County’s Only Community Radio Station streaming live every Thursday, at 11:00am PDT from the University of California-Irvine’s BEALL APPLIED INNOVATION CENTER at The Cove.  If you or anyone you know need help with their journey, please contact the Pancreatic Cancer Action Network’s Patient Services at www.pancan.org or call 877-2-PANCAN.  If you’d like to share your story or have story ideas, please contact Roberta Luna at LivingHope2055@outlook.com 

Pancreatic Cancer Action Network